On SAGE Insight: What can we learn from the case of Charlie Gard? Perspectives from an inter-disciplinary panel discussio

From Nursing Ethics
There are many lessons learnt from the case of Charlie Gard, a positive learning point that emerges from the case is the importance of a multi-lens approach. The case involved differences of opinion regarding what was in the ‘best interests’ of this seriously ill infant. His parents wanted Charlie to have access to experimental treatment in the United States, and local doctors, supported by the courts decided that this would result in more harm than good for Charlie. Charlie eventually died in a hospice on 23rd July 2017 in a hospice.  This paper highlights how media, social media in particular, played a significant role in generating opinion and heightening frenzy at times. Social media commentary together with abuse directed at the hospital did not improve hospital athe nd family relations, breaking down trust further. The International Care Ethics Observatory hosted a panel event on the theme of this Editorial.  Members of the panel brought a range of different perspectives to bear on the case highlighting the complexity and challenges and demonstrating the value of an inter-disciplinary exploration. Useful lessons for the tabloid press and social media were generated.

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What can we learn from the case of Charlie Gard? Perspectives from an inter-disciplinary panel discussion
Ann Gallagher
First Published November 6, 2017
From Nursing Ethics
DOI: 10.1177/0969733017738590

     
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